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This web-based resource provides practical and accessible guidance for lab-based researchers at all stages of their careers on involving patients and the public in their research.
A lot of guidance has been written on involving patients and the public in clinical research. But there’s very little aimed at researchers who work mainly in a laboratory, who may have very little or no contact with people affected by the condition they are studying.
The guidance was drawn up with patients and researchers in the light of results of a project looking at patient and public involvement (PPI) in six early stage research studies. PPI activities were followed and researchers and patients were interviewed during the six studies, which ranged from a PhD to a large scale programme grant how laboratory-based researchers can involve patients and the public in their work.
Key guidance focuses on:
- How to find people to involve
- How to explain research
- How to plan PPI activities
The project and guidance was developed by UCLH BRC, Alzheimer’s Society and Parkinson’s UK, in partnership with patients, the public and researchers.
If you feel any of the information on this page needs amending or would like to request the deletion of this page, please contact us at publicpartnerships@nihr.ac.uk